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	Research and Development Forum

Research Governance Documentation and Information Guide

11. CONSUMER INVOLVEMENT

Useful Websites:

INVOLVE

James Lind Library

People in Research

a) INVOLVE (formerly Consumers in NHS Research)

INVOLVE aims to ensure that public involvement in Research and Development in the NHS, public health and social care improves the way that:
• decisions are made about what should be a priority for research;
• research is commissioned (chosen and funded);
• research is carried out;
• research findings are communicated.
A wide range of information and guidance documentation is available from the publications section of the INVOLVE website. Download all documents from publications page or from the direct links for those listed below

Guidance on the type of information required by funders about their plans to use consumers

Getting Involved in Research - a Guide for Consumers (2001)
A guide for people who want to be actively involved in health research

Involving Marginalised and Vulnerable Groups in Research (revised January 2004)
Document written to stimulate thought and discussion around the issue of involving vulnerable people in research.

Brief Summary and checklist for researchers, research commissioners and research groups for involving vulnerable and marginalised people (Revised January 2004)
Brief summary of key points of above report. Includes checklist of questions to consider in involving vulnerable people in research

Involving the public in NHS public health and social care research (Feb 2004)
Briefing note for researchers. This is an introductory document designed for researchers with no previous experience of involving members of the public as active partners in research. It is a revision of the first edition which was published in 2000 and includes the more recent work of INVOLVE in the Policy Research Programme (PRP).

A Guide to Actively involving Young People in Research
For researchers, research commissioners and managers

Training for Service User Involvement in Health hand Social care Research: A study of training provision and participants’ experiences
Final report of the TRUE Project

A Guide to paying members of the public who are actively involved in research (Amended November 2005)
For researchers and research commissioners

People in Research

Website designed to highlight opportunities for public involvement in clinical research. People in Research is a UK Clinical Research Collaboration project that has been led by INVOLVE

b) Other Useful Publications

Reward and Recognition (January 2006)
The principles and practice of service user payment and reimbursement in health and social care

Let me in I’m a researcher! (March 2006)
How to involve people with learning difficulties in research

National Electronic Library for Health – Controlled Clinical Trials
General information on how clinical trials work and what to expect if you take part in a trial.

Health Technology Assessment Programme - Involving the public
HTA webpages describing ways in which the public can and do get involved in the HTA programme. Includes links to a series of help sheets explaining how consumers can get involved in the HTA programme by identifying research topics and contributing to research programmes.

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November 13, 2008

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